Last Friday, in my post ‘appointments and procedures‘, I wrote the following –
The Neurologist suggested I be referred to Radiation Oncology for radiation treatments to help boost the chemotherapy and reduce the tumor that is pressing against the genitofemoral nerve. The referral is in place for the consultation at the end of this month. My hope is the radiation treatments can be worked in the schedule along with my chemotherapy treatments. I am unsure at this time how this will be handled.
Prior to my Radiation Oncology appointment, I will have my first of two appointments for my Facet Injections. You may remember I was also referred to Pain Management and it was suggested by them to have 2 appointments for the Facet Injections.
In today’s post, I write the following –
Some posts I published in the past couple of weeks included bad days due to pain, despair, guilt, weakness, unhappiness, death and tears. There for a while I was very down, even to a point of depression. This period of time was short and now I am in a better place. I remain optimistic the next couple of weeks will bring some relief in the pain that has dominated my life for months now.
UPDATE – (as of this morning)
I wrote and completed this post earlier this week and as of yesterday it was ready to be published. I mentioned in yesterday’s post that my life is fluid and changes daily and even sometimes many times a day.
Here is a rundown of unexpected events that occurred in the past couple of days. Tuesday night I was in so much pain, nothing was helping and I was at my lowest point and just wanted to die, even if it meant doing it myself. No need to worry my friends, I learned years ago suicide is not an option – therefore this will never occur.
Wednesday morning, Gary calls and speaks with a nurse at Moffitt Cancer Center to discuss my pain becoming worse and what I am experiencing; he asks that my Oncologist Dr. L. be informed. Wednesday evening, we receive a call from Dr. L. and I discuss with him my current concerns with my health and that I am at the point I just cannot continue living with this much pain. He was informed of the increase in pain medication and of other issues my body is currently experiencing.
He is concerned about what he hears and immediately places requests for blood work, CAT Scan and appointment to see him for the next day and that I should receive a call the following day after 8:00 AM. I responded with a sincere thank you for his call and listening to my concerns and for his prompt response to have tests and see him the next day.
Thursday morning, 7:55 AM, I receive a call from Moffitt Cancer Center for the times of my appointments for that day. Midday we arrive and promptly the blood work and CAT Scan are completed. (this is after I had to drink my oral contrast liquid – yummy)
Then we meet with Dr. L. to discuss some of my history and the current pain I am experiencing. I let him know the pain has increased and my daily quality of life is poor. A physical exam is performed and then we receive the results of the CAT Scan.
The CAT Scan results indicate the current chemotherapy is NOT working – some Lymph Nodes previously identified as having cancer are now larger.
My life is currently fluid.