From my post ‘The new confidence‘, here are some excerpts –
‘….. I wrote about my struggles with having a urostomy bag on the outside of my body. As the weeks pass I am learning to cope and accept this new reality. ‘
‘Past weeks had me hesitant in going anywhere I did not have to go because of my fear of ‘leakage’ from what is now an extension of my body – my urostomy bag.’
‘With different manufacture products tested by me; there were some trials and errors that took place and incidents that were frustrating and embarrassing.’
‘…a learning process has taken place for both Gary and myself with regards to the supplies needed and process of maintaining and replacing this new extension – my urostomy bag.’
In today’s post, I write the following –
The post I just mentioned I published on February 24th of this year. My urostomy bag must be changed often. There is a method that is followed and equipment required for maintaining my urostomy bag. At home the maintaining is easy and usually scheduled. But what about being in public away from home and a mishap occurs? When I use the word mishap; I am referring to my bag leaking. I literally have had urine draining down my leg in public.
I have had 2 major mishaps regarding my urostomy bag. Because these mishaps can happen, Gary and I have to be prepared for them. In the truck is a bag that contains everything needed to remove, clean, and replace my urostomy bag. And just in case the mishap is major, I also have another bag with a change of clothes.
I wear my clothes differently now because of where my stoma is located; my urostomy bag is positioned at my waistline. Because of this, my boxer shorts are worn high above my waist and my shorts need to be very loose and worn below my waistline. The urostomy bag collects my urine, but also will collect gas.
Generally, this works out the best for me while I am out and about in public. Concerning driving, I must place a small pillow directly on my urostomy bag and the seatbelt over the pillow. This will place less pressure on the bag resulting in less likely that is will leak. I have confidence being out in public and the previous mentioned mishaps thankfully were taken care of without much fanfare. My hope is these mishaps rarely occur; but when it does, I am prepared.
My blog, I have always been truthful about me and my life. The good and bad, the ups and downs and the in-betweens. I hide nothing here as it is important for me to be honest and write about my experience with something that many people will never understand.
I write these types of posts, because one day those that do not currently have access to this blog, will read this and will hopefully understand what I went through.