A week ago today in my post ‘for as long as possible‘, I wrote the following –
It is Friday and today is the day I am looking for pain relief – today is the day I receive my Superior Hypogastric Nerve Block procedure. I certainly will update you next week with how I feel and the results of this procedure.
Next Monday I start my radiation treatments; another potential for pain relief. I have no expectations concerning the radiation, except I want something good to come from it.
From this past Monday’s post ‘Failed‘, here are some excerpts –
It is Friday evening and as usual my pain is great and I am feeling little to no difference in my pain level several hours after the procedure was done. I take my usual amount of evening pills and prepare myself for another rough night.
Gary sees what I go through each day and he is frustrated the doctors cannot find the source of the pain.
Dr. L indicates there are no other tests and the radiation treatment that starts on Monday should help with reducing the pain.
In today’s post, I write the following –
It is Friday again and day # 5 of my radiation treatments. I will take the weekend off and then start again Monday for another 5 treatments. Yesterday after my treatment I met with my Radiation Oncologist Dr. M. to discuss the status of my treatments. There is nothing new that I reported except that my pain continued to be extreme. Dr. M. felt if I would receive any pain relief from the radiation he would expect it by the end of next week. If I do not then we will re-evaluate the current plan and make possible adjustments.
Dr. M. also placed 2 referrals in at Moffitt Cancer Center for me to see other specialty groups. One group will take over managing my medications and ensure all my specialty doctors are in sync with what is taking place with my care. This group may also provide alternative pain management treatments such as acupuncture and physical therapy.
The other group is a supportive group that will provide services such as hospice and other needs I may require as I continue with treatments. Gary and I recently were talking about looking at hospice services. In yesterday’s post ‘Phone Calls‘, my good friend and fellow blogger Jodi over at THE CREATIVE LIFE IN BETWEEN wrote the following comment –
Terry. Has anyone talked to you about hospice care? I know it scares a lot of people to talk about but it is a field I work in and it is NOT a death sentence. It can give you a fuller LIFE during the journey you are on. They can provide a lot of support physically and emotionally and spiritually and help Gary and help your pain. Just something to consider. Some people use it and feel better and don’t need it any more. Others use it for many months. It is something to think about. Sending lots of love. Xo
Thank you to Jodi and other friends here that support me in so many ways. Your support, encouragement, thoughts, prayers and hugs are always welcomed and appreciated.
Happy Weekend Everyone!