I spent the last 7 days in the hospital with doctors trying to figure out the sources of my many different pains. Back on June 15, I had an appointment with my Radiation Oncologist Dr. M. Once again as with my all my appointments, I express the severe pain I am feeling and the receiving of very little relief from the current pain medications I am on. Many days I am living with a 10+ pain level.
Let’s go back several weeks before this appointment and I am expressing my pain frustrations with my Oncologist Dr. L. It was just 2 weeks before this time, I was walking on the outdoors track for 1 – 2 miles per day. Now I am having to use a cane and other activities are being affected as well such as showering and dressing myself. I also now had to give up driving; something I really enjoyed, but now with pain medications and the pain in my right hip-groin that make its way down to my knee: driving is not in my best interest.
So, in the previous weeks that came and went; more scans were taken, blood work drawn for testing, and then there were Main Management Procedures to block nerves and one more very important appointment. After several months of Gary complaining there must be something the doctors are not seeing, and with pain level as high as it is, I should be admitted to the hospital to find out the source and to treat it. At this point in time I currently have no quality of life and my days are filled with pain and tears.
At this point in time, it all becomes blurring and my brain is not functioning well; mainly because of pain medications and my walking with my right leg is all but gone.
At this point in time, there finally comes a suggestion from Dr. M., to place a referral in to the ‘Supportive Care Medicine’ group. From Moffitt Cancer Center website –
Patients may be referred to the Moffitt Supportive Care Medicine Program for consultation at any stage of cancer, including at time of diagnosis. The program works collaboratively with other health care practitioners to provide the extra layer of support that patients often need while undergoing anti-cancer treatments. While others are working to treat the disease, Supportive Care Medicine focuses its efforts on relieving the physical and emotional distress caused by the disease and assisting with planning ahead.
Upon having my initial appointment with the Supportive Care Medicine, the main doctor, Dr. C., immediately wanted to place me in the hospital due to the extreme pain level and the lack of quality of life.
So, after waiting several hours just to be admitted that were becoming unbearable for me, finally a bed became available and the start of my 7 days would begin.
This is a turning point that Gary and I were looking for that would change the course of my treatment.
More to come my friends in future posts to explain so much more.