lymphedema

Last month in my post ‘My Feet – A Fresh Perspective‘, I concluded with the following –

Much has changed since I wrote that post back in 2015 except, I continue to appreciate my feet.  What has changed?  It was only 6 weeks ago I was walking 1-2 miles per day with some discomfort.  I mentioned in several posts about my increased pain and how it was affecting my walking.  Rapidly the pain increased in my right groin and the walking became worse forcing me to use a cane and now I am using a walker. Image1 Then came reduced physical activity and most recently a 7-day hospital stay where I remained bedridden for most of that time.  This combination has caused severe edema in my feet and ankles.

My feet continue to function and do their job even though they are swollen and tired – I continue to appreciate my feet.

 

In today’s post, I begin with the following –

In the past 2 weeks, my severe edema has become worse and after communications with doctors at Moffitt Cancer Center, it was determined I have lymphedema.  Image2This is common with some cancer patients when the lymph nodes are affected.  Since I have cancer in many of my lymph nodes and with the recent decrease in physical activity; the lymphedema is now another health condition to deal with.

This past Monday, I had a visit from home health care specialist to treat my lymphedema.  My current treatment involves the wrapping of my legs with hopes the fluid will flow back toward the trunk of my body.  With many of my lymph nodes having cancer, this process may be difficult and slow in progression or not work at all.  If this treatment is unsuccessful, then other treatments will be considered.

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Treatment along with exercise hopefully will help reduce the swelling at which time I will wear compression stockings for the unforeseen future.  My understanding is lymphedema can be temporary or permanent, therefore treatment will continue for as long as the lymphedema is present.  I hope I will eventually will reduce the swelling and improve my leg muscles so I have the ability to walk without the aid of a walker or cane.

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My pain level prior to my recent hospital stay was a 10+, and afterwards I felt the level was about a 5.  Now with the lymphedema, the pain level has slowly creeped up to level 6 or 7 and at times reaching to a 10+ again.  I have an appointment today with Dr. C. in the Supportive Care Medicine group to discuss modifying my pain medicines or taking some other approach to reducing my pain.

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With recent information concerning the spread of my cancer and the pain experienced on a daily basis; I am on a roller coaster of emotions.  I accept what is taking place with my body and my life – I deal with it one day at a time.  What upsets me the most, is the effect this cancer is having on my family and especially Gary.

63 thoughts on “lymphedema

  1. Oh, dear Terry! I’m so sorry that you have to deal with lymphedema now as well. It looks so painful and I hope so much that the wrappings will help you. A friend of mine had it once too because of some hormonal disbalances and she had to wear those stockings too but the swelling got much better after some weeks. I can imagine it must be quite warm wearing them especially in Florida? Many gentle hugs to you! 😄💕

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  2. Terry, thank you so much for keeping us all updated on your condition. It must be tough to focus on a blog, while also worrying about your family. I know, I could never fully understand what you’re going through, but through reading what’s happening in your life, I feel like I’m a very, very small part of it. Know, that many people care.

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  3. Thinking about you today and I often have swollen feet but different causes. It looks like your care support is active. This is a time for you to concentrate on yourself my friend, it’s their time to support you.

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  4. This makes me so sad. I feel so much for you, and this is just yet another obstacle. Just know, Gary loves you, no matter what, as you do him. I pray your pain gets manageable and that you can smile that handsome smile you have. Thinking of you always. Love and hugs. x

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    • The compression stockings will come later Kathryn, right now my legs are wrapped tightly to help slowly move the fluid out of my legs. The wraps for now will be changed out and redone every 3-4 days. 🙂

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  5. My sympathies. 😦 I suffer from that too, and it’s no fun. The compression stockings will help, but for me? They were so annoying that eventually I stopped trying to get them on – not to mention that I can’t reach my feet any more so getting them on is a challenge indeed! Elevation is another way to get the swelling down. You’re getting excellent care obviously. And I’m glad to see each new post! 🙂

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    • Embeecee, I am sorry to hear you suffer from this as well. My legs are being wrapped right now and changed out every 3-4 days. Hopefully my swelling will go down – time will tell. Thanks for stopping by – I appreciate you. 🙂

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  6. Oh Terry, yet another heartbreaking development. I hope the compression socks and other treatments give some relief. It is so humbling to all of us that you remain so open and positive. You are an inspiration.

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  7. One day at a time, I guess that’s what we are all supposed to do. None of us know what beholds tomorrow. However, we all live like we are never going to go away until something like this crops up to whack us in the head to say, take one day at a time, Live like no tomorrow etc etc. Wish you didn’t have to suffer with pain and discomfort like this. Big hugs coming from a cancer survivor (for at least now).

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  8. Reading your posts I feel I am looking on helplessly watching an unrelenting assault. I cannot imagine what it must be like for Gary and for your close family and friends. And for you …. for you enduring ALL these painful conditions and each time you turn to walk away feeling a little less racked with pain BANG – there’s another thing to start ratcheting it up and remind you. Helpless I am but I have a strong heart and I send you all the strength I have to help you battle on. And soft hugs. As many as you can stand.

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    • Osyth, I will admit – some days I find difficulty in living. As you indicated in your comment there is an unrelenting assault taking place on my body. The emotional toll it is taking on Gary is evident as he sees me everyday and experiences what I am going through on a daily basis. It is tough on both him and I. I appreciate your strength in helping me battle on and the soft hugs are always welcomed. Hope your day is beautiful and full of sunshine. 🙂

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      • Just know that you and Gary are constantly in my thoughts. Once before I sent you a recording of Gerry and The Pacemakers ‘You’ll Never Walk Alone’ and explained the significance of Liverpool. I have just returned from that city and the song is in my head. For you my friend because you will never walk alone and my support for you, unerring as it I’d extends to Gary at all times even if I forget to mention him. 🙂

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  9. As I read through all your friends comments, all the love, and caring that is getting to you and Gary through WordPress, my heart smiles….I am deeply saddened by yet another hurdle thrown in your path….I am sooo sorry….I want you to know you are my rock….on days I feel like whining, I stop and think about you…your not only my hero, but strength and now I am adding my rock…my heart is so full of love and caring for not only you but Gary too!! Let’s just say, life has been handing you nothing but hurdles for you to have to get through…and man do you amaze me by how you have kept your head high, your heart full, and just taking one small step at a time….you are one amazing man…no doubt about that!!….please hug Gary for me and whisper in his ear…love from the desert for me….kisses my friend….soft gentle hugs….XXXXXkat

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    • Kat, your comment is kind and appreciated. I may have hurdles thrown in my path and feel like your hero But honestly Gary is the rock. He supports me in so many ways and without complaining. I get through the hurdles with Gary’s help and support. He deserves the title Hero. Thanks dear for stopping by to read and comment on my posts today. Happy Weekend. 🙂

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