In my post ‘lymphedema‘, I wrote the following –
This past Monday, I had a visit from home health care specialist to treat my lymphedema. My current treatment involves the wrapping of my legs with hopes the fluid will flow back toward the trunk of my body. With many of my lymph nodes having cancer, this process may be difficult and slow in progression or not work at all. If this treatment is unsuccessful, then other treatments will be considered.
Treatment along with exercise hopefully will help reduce the swelling at which time I will wear compression stockings for the unforeseen future. My understanding is lymphedema can be temporary or permanent, therefore treatment will continue for as long as the lymphedema is present. I hope eventually to reduce the swelling and improve my leg muscles so I have the ability to walk without the aid of a walker or cane.
In today’s post, I write the following –
For the past 2 weeks, up until this past Monday, my legs were wrapped. You may remember in my video post ‘The Real Me Now‘, I showed my fully wrapped legs. The fluid that was once in my lower legs and feet were forced up into my pelvic area and was causing me issues. First the fluid did not appear to be leaving my body. The process is this fluid travels through the lymph node system then enters the liver and exits through the urine.
With my usual issue of dealing with constipation vs a normal bowel movement, now my abdominal area was being filled with fluid. This caused added discomfort and pain to an already beat up body full of other aches and agony. So, the wrapping of the legs was removed this past Monday with a pending decision as to what the next step would be.
This past Tuesday I met with my Oncologist Dr. L. to discuss my lymphedema and current overall pain I continue to feel. His feeling on the lymphedema is to receive a different treatment that involves skin massaging and is referred to as manual lymphatic drainage (MLD). I also soon will begin wearing compression stockings during waking hours that should help in moving the fluid.
Yesterday my home health care specialist was here to begin the MLD treatment. The treatment is being modified some because I am unable to lie flat on my back and laying on my stomach is not an option either. So, yesterday’s treatment is the first of many and we are hoping for positive results. Currently my feet, ankles, calves, thighs and waist are filled with fluid. This makes it difficult for me to walk and many other daily activities we take for granted are now a huge effort for me. The pain associated with daily routine activities are exhausting for me and drain my energy so fast, I accomplish very little during the day.
My days are filled with much rest – and that in itself can be stressful to prepare for.
My days are filled with much pain – and that in itself can be stressful to prepare for.
The effort to rest, the effort to treat pain, the effort to deal with everyday activities is difficult for me.
Much of my energy is drained – but I wake each morning to try again.