Fluid

Last Friday, in my post ‘appointments and procedures‘, I wrote the following –

The Neurologist suggested I be referred to Radiation Oncology for radiation treatments to help boost the chemotherapy and reduce the tumor that is pressing against the genitofemoral nerve.  The referral is in place for the consultation at the end of this month.  My hope is the radiation treatments can be worked in the schedule along with my chemotherapy treatments.  I am unsure at this time how this will be handled.

Prior to my Radiation Oncology appointment, I will have my first of two appointments for my Facet Injections.  You may remember I was also referred to Pain Management and it was suggested by them to have 2 appointments for the Facet Injections.

In today’s post, I write the following –

Some posts I published in the past couple of weeks included bad days due to pain, despair, guilt, weakness, unhappiness, death and tears.  There for a while I was very down, even to a point of depression.  This period of time was short and now I am in a better place.  I remain optimistic the next couple of weeks will bring some relief in the pain that has dominated my life for months now.

UPDATE – (as of this morning)

I wrote and completed this post earlier this week and as of yesterday it was ready to be published.  I mentioned in yesterday’s post that my life is fluid and changes daily and even sometimes many times a day.

Here is a rundown of unexpected events that occurred in the past couple of days.  Tuesday night I was in so much pain, nothing was helping and I was at my lowest point and just wanted to die, even if it meant doing it myself.  No need to worry my friends, I learned years ago suicide is not an option – therefore this will never occur.

Wednesday morning, Gary calls and speaks with a nurse at Moffitt Cancer Center to discuss my pain becoming worse and what I am experiencing; he asks that my Oncologist Dr. L. be informed.  Wednesday evening, we receive a call from Dr. L. and I discuss with him my current concerns with my health and that I am at the point I just cannot continue living with this much pain.  He was informed of the increase in pain medication and of other issues my body is currently experiencing.

He is concerned about what he hears and immediately places requests for blood work, CAT Scan and appointment to see him for the next day and that I should receive a call the following day after 8:00 AM.  I responded with a sincere thank you for his call and listening to my concerns and for his prompt response to have tests and see him the next day.

Thursday morning, 7:55 AM, I receive a call from Moffitt Cancer Center for the times of my appointments for that day.  Midday we arrive and promptly the blood work and CAT Scan are completed.  (this is after I had to drink my oral contrast liquid – yummy)

Then we meet with Dr. L. to discuss some of my history and the current pain I am experiencing.  I let him know the pain has increased and my daily quality of life is poor.  A physical exam is performed and then we receive the results of the CAT Scan.

The CAT Scan results indicate the current chemotherapy is NOT working – some Lymph Nodes previously identified as having cancer are now larger.

My life is currently fluid.

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Cancer, Pain & Guilt

In last Friday’s post ‘I still do my best‘, I wrote the following words –

Due to the pain I have experiencing since my surgery 3 months ago, I was referred to pain management at the Moffitt Cancer Center.  This week I had an appointment with pain management to discuss the possibilities of relieving my pain.  It was decided in the couple of weeks I will have 2 appointments to receive a Facet Injection in my lumbar spine.  The injection helps to reduce inflammation and provide pain relief.  I am hoping these injections will provide the pain relief I want so I can reduce or even stop taking pain medications.

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Image Provided by: Pacific Pain Medicine Consultants

In today’ post I write the following words –

My first appointment to receive the Facet Injection is not until later this month.  If you Google ‘Facet Injection’, you receive the following –

A cervical, thoracic or lumbar facet joint injection involves injecting a small amount of local anesthetic (numbing agent) and/or steroid medication, which can anesthetize the facet joints and block the pain.

I will be receiving the Facet Injection in my lumbar area as this is the origin of one of my pains.  I also have a different pain that I believe is related to nerves and I am hoping the appointment next week with a Neurologist will help locate the source and find a way to reduce the effects it is having on me.

The tiredness and the pain still immerse my body and all the medications; and there a many of them, are helping me survive each day.  Some days are better than others and on occasion Gary and I have ventured out and did some exploring around the area.  I do tire easily and my walking these days is slow, very slow and with each step there is some level of pain that accompanies it.  The longer the walking, the more the pain increases and the tiredness sets in.

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Image Provided by: moffitt.org

Yesterday, I had my chemotherapy treatment and nothing out of the ordinary came from it.  The next couple of days I most likely will sleep more than usual and that is what my body needs at this time.  I do not have another treatment for several weeks – remember with this round, I take 2 weeks off between treatments.

Next week I see a Neurologist and I hope with that appointment to find the source of my nerve pain.  I am also hoping to find some relieve from this pain without having to continue to take a great deal of pain medication.

Much is taking place these days as I try to live a life of quality.  It is difficult some days and I feel I just exist with no purpose or drive to do anything of worth.  I also feel that I am wasting Gary’s life, he deserves to live his life with quality and adventure and excitement and value.  Me and my illness is preventing this, he is taking care of me and I am thankful he is in my life, I would not survive without him.  But he deserves better, and I feel guilty.

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Cloud Dreaming

“Clouds come floating into my life, no longer to carry rain or usher storm, but to add color to my sunset sky.”

– Rabindranath Tagore

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“The sun always shines above the clouds.”

– Paul F. Davis

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“Nature is a mutable cloud, which is always and never the same.”

– Ralph Waldo Emerson

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“A cloudy day is no match for a sunny disposition.”

– William Arthur Ward

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all is not lost

My category ‘Pictures & Stories’ are posts with me writing a fictional, creative short story about a picture.

all is not lost

all is not lost –

The gentle crashing of the waves against the rocks brought a feeling of comfort.  The days were long and the nights even longer, but when the sun was full, the waves would again brush the landscape that was now his home.

The time alone brought solitude and the knowing of the unknown future brought a sense on insanity.

Who would know he is here?

Would efforts be made to save him from his paradise?

It wasn’t that far, for the distance exposed the civilization.

But still no one knew he was there.

But the waves that filled his days, were there once again as a gentle reminder that all is not lost.

There is a mirror

There is a mirror you see

Right in front of me

And as I look at the current me

I am reminded of what I use to be

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The daily shower to clean the body

Now the body seems so shoddy

There once stood a man who some thought a hottie

But now that changed man he considers himself a nobody

 

The shower stands in front of that mirror

The doors open I am not far but nearer

I have changed much it is so much clearer

And times I see myself as inferior

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You see that mirror it sees the truth

It tells me my reflection is so much different from my youth

As I open the doors, that shower that booth

You see that mirror it sees the truth

 

But it only reflects the outside of me

There is much more to me, than one can see

My mind will wrestle with the reflection of me

But I remind myself, that, that I can still see

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The body is unimportant, because I have changed

Yes, the inside is a little rearranged

But the personality that cannot be exchanged

It remains positive and it remains unchanged

 

There is a mirror you see

Right in front of me

And as I look at the current me

I am reminded of what I can be

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It’s 2:16 in the morning

I have had a restless night, not much sleep because I have thoughts swirling in my head.

It is a while now since I really have had one of these nights.  Since surgery, I am taking medications to help me sleep because I continue to have pains associated with my surgery and recovery.  I also have pains not associated to my surgery and recovery that make it difficult at times to find a comfortable position to sleep.

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Image Provided by: YourStory.com

But on this particular night, it is those thoughts swirling in my head.

I am unsure how long it will be by the time I publish this post.  I may have upset someone and I may have upset you and I may have upset myself.  I make no apologies to no one, including myself.

This blog has always and will always be about me and my life and for that I make no apologies.  I am who I am and have changed for the better in many ways over the years.  I continue to change for the better, though at times the changes come slow; to me at times slower than what my life will provide me here on this earth.

When I die, I will not be a perfect person; I hope to be a person that at least tried to be a better person.  I strive every single day to be a better person.  Some days I succeed and many days I fail; some days I fail miserably.

My point is I try and I do it my way, because I know me better than anyone else knows me.

I have been told at times by people that they do not understand me.  I at times do not understand me either, but I still know me better than anyone else.

When creating this blog, it was a way for me to write about me and my life.

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Image Provided by: We Heart It

My life in words for I hope one day those important to me would read.  I have no idea if they will read it or not – I don’t know.

This brings me to those thoughts swirling in my head tonight, this restless night and me writing this post at 2:16 in the morning.

I don’t really like to be rude; I can be though, and have been times in my life.  I can be rude and have been rude to people I know and to strangers alike.  My personality is complex and at times people do not understand me.  This has already been identified.

When writing and publishing posts, I attempt to write in a way where I do not come across as rude and I try to consider other’s feelings.  So please do not take this the wrong way – I am being honest here.

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Image Provided by: http://www.timorahilly.co.uk

When I write posts about me, the true very personal me, I ask for no advise.  I write the true personal me because it is important for me to do so.  I have come to appreciate support and encouragement here and the friendships I have made are invaluable.

Now, again at 2:16 in the morning, I am writing the true personal me.  It was a little while ago; and that week was tough and that ‘I don’t know’ was tough and therefore I was rude because I did not ask for advice.  I was writing the true personal me because it is important for me to do so.

United We Stand

In many of my posts I mention that I currently live on the Naval Air Station (NAS) Pensacola, Florida.  I would like to think I bring a unique perspective when writing about my experiences and feelings while living here.  In my post ‘Reveille‘, I wrote about the pounding of my heart when I hear on the loud speakers the National Anthem after reveille.  In my post ‘Moment of Silence‘, I wrote about taking a moment of silence to observe and honor the death of one of the Blue Angels pilots.

These events and experiences have changed me and I see some things differently.

Do I have a different perspective today than I once had?

Yes, I do have a different perspective today about many things because of where I am living and my health and what I am living with and without.

Living on a military base can change perspective.

Living with cancer can change perspective.

Living with less possessions can change perspective.

On the Naval Air Station, I see young women and men training, working and serving this country.  They stand tall and proud and I see sincerity in them and this has me thinking about the importance of this country to me and those around me.

Last year I had minor surgeries, chemotherapy and most recently a major surgery.  At this point in time parts of my future are unknown with regards to what comes next with my cancer journey.

I stand tall and proud and I think about the importance of others in my life that are helping me through a difficult time.

Today I live with much less as last year the downsizing was completed and living minimal is taking place.  What a relief to have less and realize the importance of it.

The military enlisted, those serving I salute you and honor you and say ‘Thank you’.

Those around me helping me through a difficult time, I appreciate you and want to say ‘Thank you’.

And to my husband, the one who is always beside me, you are amazing and to you I say ‘Thank you’.

Some lyrics from the song ‘United We Stand’ –

There’s no where in the world that I would rather be

Then with you my love

And there’s nothing in the world that I would rather see

Than you smile my love

For united we stand. Divided we fall

And if our backs should ever be against the wall

We’ll be together, Together, you and I

1998

Today is the 22nd month of my blog!  My anniversary post is something different than the usual posts I write.

3 (March) + 13 (Day) + 22 (Months) = 38

When I was 38 years old, the year was 1998.  If my memory serves me correctly, I found my early 30s to be fun and exciting and found my late 30s to be stressful.  I actually hated my late 30s because I was on the down slope to 40.  Little did I know my 40s would be wonderful years that were a turning point to good things to come.

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Image Provided by: http://www.spreadshirt.com

Okay back to 38 and 1998.  What was going on in 1998?

If you research, you will find interesting events that occurred in this year.  There were the usual earthquakes around the world, and then there was the Winter Olympic Games in Japan; oh, and let’s not forget President Bill Clinton denied he had “sexual relations” with formal White House intern Monica Lewinsky.

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Image Provided by: TIME.com

Okay, enough of that type of information, let’s find some interesting events –

Did you know in 1998, The Search Engine Google was founded?  I did not know this – you may need this information someday for a trivia question.

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Image Provided by: Computer Weekly

Did you know in 1998, Titanic was a popular movie? It was released in late 1997 – I think I went to the movie theater 3 or 4 times to watch it.

Did you know in 1998, Spice Girls were popular?  I like Spice Girls, one of my favorite songs of theirs is ‘Wannabe’.

Did you know in 1998, Star Trek: Voyager was a highly-watched TV show?  Yes, I am a trekkie; I have seen all the TV series, but I will admit I have missed a couple of the most recent motion pictures.  I hope to catch-up soon on seeing these movies.

In 1998, my birthday was on a Saturday and most likely I did nothing to celebrate it.  That year, I was in my 3rd and final bad relationship that would end soon and it would be another 5 years before I would meet Gary.

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Image Provided by: The Health Psychologist

1998 and 38; an odd time for me as my 30s were coming to an end and soon the 40s would begin.

Today is the 22nd month of my blog!  My anniversary post is something different than the usual posts I write.

oh, why not?

From theguardian.com article ‘How selfies became a global phenomenon’ –

It starts with a certain angle: a smartphone tilted at 45 degrees just above your eyeline is generally deemed the most forgiving. Then a light source: the flattering beam of a backlit window or a bursting supernova of flash reflected in a bathroom mirror, as preparations are under way for a night out.

The pose is important. Knowing self-awareness is conveyed by the slight raise of an eyebrow, the sideways smile that says you’re not taking it too seriously. A doe-eyed stare and mussed-up hair denotes natural beauty, as if you’ve just woken up and can’t help looking like this. Sexiness is suggested by sucked-in cheeks, pouting lips, a nonchalant cock of the head and a hint of bare flesh just below the clavicle. Snap!

There was a time, I never took selfies, why would I?  I do not participate much in Social Media except my blog here on WordPress.  My posts are then sent out via a tweet on Twitter.  I find I have no time for other Social Media platforms and honestly soon will most likely shutdown my Twitter account.  However, I will keep my WordPress blog going as long as I enjoy it and feel up to it.  What does this have to do with selfies?

There was a time, I never took selfies, why would I?  My blog began with me anonymous.  As the months came and went I became less intimated with expressing myself in words and as fellow bloggers began to read and comment, I felt a sense of comfort.  So, I exposed myself; some of you may remember my posts that slowly exposed me; and now I am totally exposed for all to see.

Now because I am exposed, I take selfies, lot of selfies.  How many is too many?  Most of the time my selfies do not come out the way I would hope for, so another is usually taken.  I now take lots of selfies; most of them of me alone, still many more includes Gary and sometimes Roxy.

Google “selfies meaning” and you receive the following –

sel·fie

ˈselfē/

nouninformal

plural noun: selfies

a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and shared via social media.

“occasional selfies are acceptable, but posting a new picture of yourself everyday isn’t necessary”

I do not usually post a picture of myself every day, it depends on the topic of the post I am publishing.

This past Saturday in my post ‘what comes next…‘, included a picture of me.  When my post is about me and my health, I usually end it with a picture of me.  That post last Saturday, I used an older picture with no intentions.  That post indicated I had lost 22 lbs. of weight since my surgery; this is true, but the picture included is an older picture, therefore I may have misled some readers thinking the photo is the current me.

There was a time, I never took selfies, why would I?  But now, oh, why not?

This post is filled with a collection of selfies.  This last photo is the current me – me with 22 lbs. less weight.

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Sunrise Offered

Sunrise offered a very beautiful spectacle; the water was quite unruffled, but the motion communicated by the tides was so great that, although there was not a breath of air stirring, the sea heaved slowly with a grand and majestic motion.

– George Grey

I took this video several months ago, early one morning to watch the sunrise.

It had much to offer me.

Since my surgery I have yet to walk on the beach, it is waiting for my return.

One day when feeling a little better I plan to take a walk on the beach again.

One day when I am recovered I plan to watch another sunrise.

And take in what it has to offer.