lymphedema

Last month in my post ‘My Feet – A Fresh Perspective‘, I concluded with the following –

Much has changed since I wrote that post back in 2015 except, I continue to appreciate my feet.  What has changed?  It was only 6 weeks ago I was walking 1-2 miles per day with some discomfort.  I mentioned in several posts about my increased pain and how it was affecting my walking.  Rapidly the pain increased in my right groin and the walking became worse forcing me to use a cane and now I am using a walker. Image1 Then came reduced physical activity and most recently a 7-day hospital stay where I remained bedridden for most of that time.  This combination has caused severe edema in my feet and ankles.

My feet continue to function and do their job even though they are swollen and tired – I continue to appreciate my feet.

 

In today’s post, I begin with the following –

In the past 2 weeks, my severe edema has become worse and after communications with doctors at Moffitt Cancer Center, it was determined I have lymphedema.  Image2This is common with some cancer patients when the lymph nodes are affected.  Since I have cancer in many of my lymph nodes and with the recent decrease in physical activity; the lymphedema is now another health condition to deal with.

This past Monday, I had a visit from home health care specialist to treat my lymphedema.  My current treatment involves the wrapping of my legs with hopes the fluid will flow back toward the trunk of my body.  With many of my lymph nodes having cancer, this process may be difficult and slow in progression or not work at all.  If this treatment is unsuccessful, then other treatments will be considered.

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Treatment along with exercise hopefully will help reduce the swelling at which time I will wear compression stockings for the unforeseen future.  My understanding is lymphedema can be temporary or permanent, therefore treatment will continue for as long as the lymphedema is present.  I hope I will eventually will reduce the swelling and improve my leg muscles so I have the ability to walk without the aid of a walker or cane.

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My pain level prior to my recent hospital stay was a 10+, and afterwards I felt the level was about a 5.  Now with the lymphedema, the pain level has slowly creeped up to level 6 or 7 and at times reaching to a 10+ again.  I have an appointment today with Dr. C. in the Supportive Care Medicine group to discuss modifying my pain medicines or taking some other approach to reducing my pain.

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With recent information concerning the spread of my cancer and the pain experienced on a daily basis; I am on a roller coaster of emotions.  I accept what is taking place with my body and my life – I deal with it one day at a time.  What upsets me the most, is the effect this cancer is having on my family and especially Gary.

The Tampa River Walk

Gary and I are getting out a little to explore the surroundings of our new location.

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When my body allows, we go out and find new areas to discover.

Several weeks ago, we drove not far from the MacDill Airforce Base and parked to take a walk.

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Our destination was ‘The Tampa Riverwalk’.

Gary was having some fun!

I wanted to share some pictures with you of our walk that day.

Fish Without Feet

My category ‘Pictures & Stories’ are posts with me writing a fictional, creative short story about a picture.

Fish Without Feet

Fish Without Feet –

So, I was minding my own business, you know swimming around looking for food.  Then it happened!

Really, who knew?

I was picked up and taken away far from the water.

The wind blew and the waters swelled and there I went up and over the rocks.

Really, who knew?

All I need now is to be put back into the water so I can continue looking for food.

I am a fish without feet and therefore unable to walk back.

I would greatly appreciate your help today.

Upcoming Weeks

In my post ‘The new confidence‘, I mentioned a new confidence with the new me that is allowing me to get out a little more.  I also wrote about the status of my lower back pain and the future follow-up appointments with my Urologist and Oncologist.

That post was published a week ago, and another a week has gone by and the recovery continues.

The lower back pain is lessoning some, in turn allowing me less disruption in the middle of the night during sleep.

Today and this upcoming next week should reveal perhaps what is to come in the immediately future months.

Today, I have an appointment with my Oncologist Dr. D. to discuss the possible involvement in a trial medication for people who have Stage 4 Bladder Cancer.  We will also discuss the options of where this drug would be administered; Dr. D.’s location or an advanced cancer center.  I have completed some research on the drug used for this cancer trial and ultimately will make an informed decision when the time comes.

Next week has two additional appointments.  You may remember I requested a referral request from my Urologist Dr. P. for a second opinion with another Oncologist.  Gary and I want to ensure we have all possibilities available to us to make an informed decision for my future care.  A second set of eyes from another professional will provide us with the assurance that we have all facts and options available to us.

Next week also finds me having another surgery follow-up appointment with my Urologist Dr. P.  Now that it is over 6 weeks since my surgery, from my point of view, my recovery seems to be going well.  I feel confident Dr. P. will agree with this.

As the temperatures here in Pensacola continues to warm up and the days become longer, the recovery will continue to proceed.  More walks will take place and I will continue to make visits to the gym for mild workouts to help build my strength back.

The upcoming weeks will help in determining what is to come in the months ahead concerning my healthcare and future plans.

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Sunrise Offered

Sunrise offered a very beautiful spectacle; the water was quite unruffled, but the motion communicated by the tides was so great that, although there was not a breath of air stirring, the sea heaved slowly with a grand and majestic motion.

– George Grey

I took this video several months ago, early one morning to watch the sunrise.

It had much to offer me.

Since my surgery I have yet to walk on the beach, it is waiting for my return.

One day when feeling a little better I plan to take a walk on the beach again.

One day when I am recovered I plan to watch another sunrise.

And take in what it has to offer.

Hallway Walking

I have a personal blog goal; that is to post every day and since the beginning of my blog, I have met this goal.  Knowing I was having a major surgery and the days following would be difficult for me, I scheduled my posts for this past week and disabled the comments.  I do not like to disable comments, because I certainly enjoy and look forward to your responses.  But, I knew ahead of time I would not be feeling well enough to take the time to properly respond to all the wonderful comments I receive.  I appreciate each of you allowing me to disable comments this past week.

A short video about how I am feeling and how my recovery is taking place.

Comments are enabled today and I will do my best to respond in a timely fashion.  I may be a little slow at responding, please be patient.

Sand Boogie

Hello everyone, this post is a Video Log post related to Boogie Blogging.

What is Boogie Blogging – dancing, moving to music, making a fool of myself, creating laugher within you.

I like to dance and I like to move; movement is good for all of us.  Why not have fun while we are moving?

It you like the music with my videos, you are welcome to get up and move or dance with me!

Let loose, let’s have fun, let’s do some Boogie Blogging.

 

Boogie Blogging while walking in the sand –

mushrooms

My fellow blogger and friend Jodi over at LIFE IN BETWEEN, published a post titled Perspective which included a picture of a mushroom.

Here is my comment to her post –

Jodi, I have taken many walks recently at my new location. And yes, I have seen nature in a different perspective. Humm, I think I may have an idea for a post. Happy Wednesday!

Thank you Jodi for your perspective, here is my post –

There is no going to the gym lately, I do not always have the energy or want to be around other people and then there is the tube coming out of my back attached to a bag.  So the form of exercise presently is walking, some are short and others are longer.  When taking these walks my perspective is different, I see nature differently, I see greenery, trees, flowers, water and yes mushrooms.

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Why do I see nature differently?  Is it because I am taking more time to see nature, to view it and to take it all in?  Is it because I have less responsibilities and more time to relax and enjoy life?  Or is it because I have cancer and my life is now lived differently with a future of unknowns.

I see mushrooms on my walks and as Jodi wrote in her post –

Sometimes

we need to look

at things

from a

different

perspective.

Wikepedia.org indicates the following –

A mushroom (or toadstool) is the fleshy, spore-bearing fruiting body of a fungus, typically produced above ground on soil or on its food source.

To Jodi and I, it is more than that.  It is perspective.

I see the mushrooms on my walks and I see a different perspective; I see it all differently than before.

Walk Boogie

Hello everyone, this post is a Video Log post related to Boogie Blogging.

What is Boogie Blogging – dancing, moving to music, making a fool of myself, creating laugher within you.

I like to dance and I like to move; movement is good for all of us.  Why not have fun while we are moving?

It you like the music with my videos, you are welcome to get up and move or dance with me!

Let loose, let’s have fun, let’s do some Boogie Blogging.

 

Boogie Blogging while taking a walk –